Tee It Up! For The GFPD 2017 will take place in Normal, Illinois on May 18-19, 2017. This fundraiser will be held in honor of our son, Max Chapman, who was diagnosed in January 2015 with a very serious, ultimately fatal genetic condition called Peroxisomal Biogenesis Disorder (PBD). All proceeds from the event will be donated to the Global Foundation for Peroxisomal Disorders (GFPD), a 501(c)(3) non-profit charity founded in 2010 to directly fund medical research and support families affected by PBD.
Max is a happy, loving, playful 3-year-old boy who lives in Bloomington. We are heartbroken by the diagnosis, but are inspired and determined to make a difference for Max and all of the children battling this awful disease. We truly treasure every moment we have with Max and celebrate every milestone.
PBD, also known as Zellweger Spectrum Disorder (ZSD), is extremely rare and affects approximately 1 out of 50,000 children. Only a few hundred children are known to be diagnosed with PBD worldwide. This degenerative disease affects all parts of Max’s body, with notable impacts to his vision, hearing, liver, muscle and bone strength, and general physical development. There is currently no cure for this disease, though there is ongoing medical research. However, as with many rare disorders, funding is limited.
Last year, in our inaugural event, Tee It Up! For The GFPD raised nearly $100,000 for the GFPD. We were thrilled to have 220 golfers, 400 reception attendees, 150 sponsors, 145 donated auction items, 200 additional donors, and over 50 volunteers contribute their time, money, energy, and wonderful generosity to support a first-time event! The money we raised helped fund a cutting-edge fellowship at the National Institutes of Health (NIH) in Washington, D.C. This fellowship will use advanced robotics to conduct large-scale screening of FDA-approved compounds in the hopes of finding a possible treatment for PBD.
In addition to funding medical research, the GFPD also provides crucial support to families affected by PBD and connects those families with the leading medical experts at a bi-annual Family & Scientific Conference. To learn more about the GFPD, please visit www.thegfpd.org.
“Tee It Up! For The GFPD 2017” will include a Reception on Thursday evening, May 18th, featuring live music and a silent auction, followed by a Golf Scramble on Friday, May 19th at Weibring Golf Club in Normal, IL with opportunities to play in either a morning or afternoon session.
There are a variety of sponsorship levels and options to provide support, including donating items for the Silent Auction.
Please join us in supporting the GFPD to help find a cure for PBD!
Todd & Corin Chapman
To donate to the GFPD, please click here. Please specify Tee It Up! For the GFPD under "Purpose"